Missing Elizabeth
I miss her so much.
There is a huge hole that just won't go away. Every time I leave my bedroom I have to pass through Elizabeth's room to get to the rest of the house (terrible set-up now, but it was always nice before to have our rooms adjoining). I'm finding myself either holing up in my room or staying in the living room to avoid walking through. I just keep wanting her to be back in her bed, telling me to rub her tummy or scratch her back or put lotion on her. I am miserable with loneliness missing her, no matter how many people are around. I would give or do anything just to hold her again.
I already knew she wouldn't outlive me. Her diabetes alone was severe enough that to make it to early adulthood would have been challenging. I knew she could never be pregnant and that I'd never experience that. I had already grieved on some level for all that I knew she'd never do or have as an adult, but I still thought she'd at least have her childhood. We knew she was dying, and yet it is still a shock.
She gave me so much. I wish there was more I could have done for her. Everything we did, all the treatment and the research and switching hospitals and just everything, all of it couldn't save her. It should have been enough and it wasn't.
How many more kids? How many more families?
I am so thankful that I was her mommy. As much as it hurts, I still feel so blessed. Is it possible to feel cursed and blessed at the same time? I think that describes it pretty well.
The boys want to go to Disneyland. We are taking them tomorrow and staying in one of the Disney hotels tomorrow night. We won't be back until probably late Saturday, so don't think we're ignoring any phone calls!
11 Comments:
Oh, Emilie, if anything, you kept her alive longer than anyone thought she would be. You were her hero. Every group, I helped her draw pictures of you/for you. She told me stories of what a fantastic mom you are. And you still are. I hope you can enjoy Disneyland. I feel Bethy everywhere, and I know that if I can feel her, she's with you too. I know that there is nothing that will bring her back or make it better, but you ave to know that none of it was your fault. You did the best you could. Candye and I met for lunch today and we talked about how amazing you are. I hope we don't lose touch. I love you and I loved her, and I know she is still all around us.
E,
Oh my heart just aches for you and your family. I'm so sorry you have to experience this emptiness and pain.
Your family is just so special and lovely and it seems so unfair that such wonderful people have to experience such a great loss.
You are a very strong and amazing woman and I know you will smile again, laugh again and live again.
Please know all of you are in our thoughts and prayers each day.
We hope to see you and the boys sometime in the near future.
Until then, much love...
Carrie Anne & IRV Blevins (& Ozzie too)
Emilie,
My heart aches for you and I wish there was something I could do or say to ease your pain. I know there isn't, but I pray for comfort for you and the whole family. I ask for a settling peace to surround all of you who love her with all your hearts and souls.
Will Rogers once said, "Being a hero is about the shortest-lived profession on Earth" and Princess Elizabeth was definitely a hero to you , your family and countless others. Heroes do live forever and her spirit shines on. I am sending you all the love and positive energy and prayers that I can possibly muster. Still holding all of you in my heart, Tina Wood in MA
Emilee,
I wish I could wrap my arms around you and your family. I can't imagine what you are going through, but I know the love a mom has for her children and that nothing is stronger. I am praying for you. I love you.
Sara C.
Emilie- i know that we don't know eachother- i only know Elizabeth from following your blog over the past 2 years- and your story has really touched me in a deep place in my heart. I have a daughter same age as Elizabeth- born April 5/00 and even though some days her feistieness drives me bananas, I can't imagine my life without her. i miss Elizabeth, and your story has made me be a better mom to my daughter Avery and to not sweat the small stuff. So what if her room isn't tidy, or she wants to wear stripes and polka dots, or so what if she doesn't eat all her dinner (that's what end of evening peanut butter sandwiches are for, right?) I know i can't say anything to bring you comfort- just take every day one at a time, and try your best to be thankful for every second you had with her and know she too loved you more than all the stars in the sky. thinking of you... Trish from Canada
I wish I could give her back to you. My heartaches for your loss.
I will think of Elizabeth whenever I see a mermaid or a princess.
She made this world a better place, just by being here for 6 years.
My Sweet Em: My heart and prayers are with you. Even before I could ask, last night at our bible study, three people asked to pray for you. The boys need you so much, I am so happy you are taking time for them in the midst of your pain. Sara really wants to reconnect with you and help you with your little guys. We love you, Aunt Ginny (almost, smile)
I am so sorry. I can't begin to know what it is to walk in your shoes right now. But I ache for you, a complete stranger, each time I think about what you are enduring. I became teary-eyed yesterday in Wal Mart when I saw the advertisement for the new Barbie movie coming out next week.
Hope each day brings you more peace and enjoy the wonderful memories you shared with your special girl.
Emilie, I have to say that following your journey with Elizabeth, you and your family did everything and then some to give Elizabeth every possible chance to beat this disease. Sadly science has not caught up with the fighting spirit of that sweet little princess! She gave it her all and that is a testament to all the love she was surrounded with during her battle with ACC.
Please don't be so hard on yourself. I know it's normal to wonder what if, or could I have done more, but considering how aggressive this cancer can be she survived far longer than I'm sure anyone would ever have expected her to survive!
I hate this disease too. It has taken so many of my loved ones that I quit counting. Since 1990 it has been almost one each year. I'm working on a project to help fund the cure. Until then, I make comfort caps for others that need them and hope that someday no mother will ever be put through the ordeal of losing her precious princess like you did with Elizabeth, and that no daughter has to lose her Mom like I lost mine.
I will keep you and your family in my prayers that the good, healthy, precious memories of Elizabeth grow sweeter and that over time they overshadow the years of doctors and treatments.
With hugs, Christina Hall
http://www.inspiringthots.net/movie/wu-missingme.php
Paste this into your browser and view. I thought of you when I saw it. Angel hugs, Tina
http://www.InspiringThots.net/movie/wu-missing-me.php
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