Feeling better!

Yay! Elizabeth is feeling back to her old self again... she came through the door at 6:30pm after a full day at the hospital yelling for more food. Mom couldn't be happier. Hopefully today was simply a one day thing...

Not feeling so well today

Elizabeth is running a low grade fever that she seems to have woken up with. She has completely lost her appetite (VERY rare for her!), and didn't even want to finish the warm milk I tried to get her to drink. This morning she was nauseous and she has a huge headache, complete with light sensitivity. Her blood sugar is normal, so we know it's not related to that.

Elizabeth was due for a blood draw at CHLA today anyway, and Dad was already planning to take her in so I could have a chance to catch up with laundry (approaching mountain status). They are there now. We were planning to have a PA look at her while she's there, just in case there is something obvious that we are overlooking.

Elizabeth has been on Sutent since April 21 (almost 3 weeks now). Up until now, she has felt GREAT! It has been really great to see her feeling so good and full of life. We have had the chance to do a lot together as a family (pictures will be posted soon!) and are even planning our Make A Wish trip now. One of the side effects, though, of Sutent is fever... hopefully that is all this is. When Elizabeth was on Gem/Ox therapy she also had frequent fevers, which was determined (after 5 hospital emergency fever visits) to be chemo side effect related.

Elizabeth's AFP levels were checked on March 28 (20 days post surgery) and were down to 229. They had risen to 601 by April 21, the day we started back on therapy. She will have them checked again today. I fully expect them to be higher--3 weeks probably isn't long enough for the Sutent to start bringing it down (assuming it does).

Please pray that this recent "sick" feeling of Elizabeth's goes as quickly as it came, and that it is NOT a sign of things to come. I'm praying that it is simply no more than a little dehydration.