Elizabeth's Story

Elizabeth's Story

...previously an update for friends & family about Elizabeth Hill and her fight against her childhood cancer acinar cell carcinoma of the pancreas
...now a place for remembering the fiesty princess she was.

Monday, May 21, 2007

No real news on my dad... he's still inpatient (as anybody who has experienced the glory of hospitalization knows, Friday nights are perhaps the worst times to be admitted--nobody knows anything until late Monday once the facility is up and running again during the week) and we still don't have a diagnosis. They have run every conceivable blood panel, every tumor marker, even ultrasounds and a CT and chest x-ray, and I almost forgot to mention the EKG. He is off antibiotics now, but is being treated for his presenting symptoms just not the underlying cause since we still don't know what that is. Ugh, the frustration all comes back and slaps me in the face. In some ways it feels like reliving part of the nightmare, just in a different way. It all just reminds me of all the crap with Elizabeth and how hard some of those days were--yet I'd do anything just to have even one of the worst days back again. I just miss her so much. She would have turned seven on Thursday. We should be planning her Disney Cruise or a Disneyworld trip, not trying to finalize her memorial headstone marker. I think I'm finally starting to feel some anger about how much she went through and how crappy and unfair it all is. It just sucks because there is no one to be angry at, nothing to really focus the anger at or blame the circumstances on. So many feelings and no real purpose or direction for them. I'm okay, I'm not about to blow--I don't want anyone reading this to worry about me, I'm coping with it and dealing with it appropriately. I just can understand now how readily people who have experienced tragedy (in any sort) get so angry and want to start lawsuits or try to hold other people or entities responsible--it gives their anger direction. Sometimes things happen that we (nor anyone else) have any control over and it's not fair and it makes us angry and there is still noone responsible for it and nobody to hold accountable. And we are left feeling hurt, angry, and utterly helpless because we can't change it. Pretty similar to how we feel once our children are diagnosed with cancer--the tragedy which is the precursor to bigger tragedy.

Please say an extra prayer for two of Elizabeth's cancer fighting friends. One is in remission and off treatment, but she has been in my heart for the past couple of days and I really really feel like she could use some extra prayers. The other is still in treatment but doing well, but he is far from done and he has been on my heart, too.

Thanks for checking in. Oh, and if anyone has any corporate or personal connections with people high up in the Build A Bear Workshop company, please contact me. I have a potential project I think Elizabeth's Memorial Fund could develop in conjunction with them.

Take care.

8 Comments:

At 12:47 AM, Anonymous Anonymous said...

I just wanted to send my love and prayers.

Love,
Ayesha

 
At 5:14 AM, Anonymous Anonymous said...

Emilie~
Just want you to know I am thinking of you and praying for your load to lighten. You really deserve a break! I pray for your dad too, that he is soon diagnosed and taken care of and then home. I wish I knew just what to write, but I want you to know you are thought of with lots of heartfelt prayers. HUGS, Tina

 
At 8:02 AM, Anonymous Anonymous said...

Sending out prayers for your family, especially your Dad, and for the children still affected by cancer.

I always keep you and your family in my thoughts and prayers and try to check in each week to see how you're doing.

I don't know if you knew but we lost Toni Scutti off the ACC board. She fought bravely and was an inspiration to us all. She too has earned her wings. I'm sure her family would appreciate your prayers as well.

Take care and Hugs, Christina

 
At 4:39 AM, Anonymous Anonymous said...

Emilie~
Just wanted you to know that you are still in my thoughts and prayers. Angel Hugs, Tina

 
At 4:29 AM, Anonymous Anonymous said...

Emilie~
I am still checking often and hoping that things are going well for you and your family. You are always in my prayers. Hugs, Tina in MA

 
At 7:19 PM, Anonymous Anonymous said...

How did the interview go?

 
At 5:49 AM, Anonymous Anonymous said...

Emilie~
I keep checking your blog and hoping to see news from you. I want you to know that I am thinking of you and praying for you. I hope you are getting along well and are having a fun & busy summer and that's why you haven't written anything. You deserve a million blessings or more and I hope they are coming your way. Hugs, Tina in MA

 
At 3:55 AM, Anonymous Anonymous said...

Interesting to know.

 

Post a Comment

<< Home