Going to CHLA

We will be at CHLA most of the day. We are scheduled to meet with Dr. Stein for a surgical consult late this morning, and then have an appointment with Dr. Marcio (oncology) early afternoon. Elizabeth is having more and more pain. Last night she gave us a scare when her heartrate hit the 190's (she usually only hits the 150's when she is running high) and she started burning up. We are wondering if it was a reaction to her pain medication (tylenol #3). Her blood pressure was sky-rocketing, she had a terrible headache, and all of her blood vessels were bulging. We were able to get her started on her oxygen and help her calm down with some guided imagery, but it took a bit to get her back down to the 140's. This morning her heartrate is normal and her headache has gone, but her tummy pain is continuous. There isn't much we can do to help her--we feel so helpless. We have done everything we can from hot packs to putting pressure to leg exercises to help relieve the gas pains, but it is pretty bad. Please say a prayer today that she can find some relief, and that there is something the docs can do to help.