Going Home!

Well, after being in the hospital for a month and a day (no, that's really how long it's been--I'm not being figurative!), Elizabeth will FINALLY get to come HOME today! Of course, it's been so long that I don't think I'll actually believe it until she is home in her bed. This marks the end of our longest hospital stay ever... and hopefully she won't have to endure one again for a good bit of time. There were so many little things going on (and big things, too) with this stay that it's really good to get her home. We still think CHLA is the best place for her, and her primary docs there are the best ever, but it has been more than a little frustrating dealing with hospital policies and mix-ups this time around. I'm so excited to get her home!

Mike is off to camp again--this time to Camp Ronald McDonald for Good Times near Idyllwild. He'll spend another week at camp and once he's back we can hopefully get some quality family time all together again. We're going to work on planning that Make A Wish trip that Elizabeth has been waiting for, and try to squeeze in a couple of days in San Diego once she feels up to it. We will need to have oxygen for her at home for a little bit still as her lungs continue to heal, and she will still be getting IV antibiotics, so we've got a couple of weeks before she's up and about again it seems. We will discuss treatment plans for her cancer and precautions to protect her liver with Dr. Marcio next week, and hopefully get some sort of plan worked out.

Please keep Elizabeth in your prayers. It's beginning to feel like the path we're on is taking a turn that I don't want to go down just yet, although no parent is ever ready for that I'm sure.