Happy Anniversary and hospital update

Well, it is one of those anniversaries that are hard to celebrate. It has now been over 2 years since Elizabeth was diagnosed. Friday (today) marked the big day. Elizabeth spent most of the day sleeping. The tube went in successfully late on Thursday. There were some issues with her coagulation studies that put it on hold, but that was quickly resolved with a lot of help from everyone in Radiology including Dr. Stanley who personally walked the new blood draw over to the lab. It took less than 20 minutes to get the results.
Early information on the cause of the fluid from samples is leading to some type of infection. Elizabeth has already been on several antibiotics with no improvement, so they are leaning to a fungal infection. It will be days before we get any concrete answers. Meanwhile the nasty thick fluid is draining out, so that is the most important thing right now. She will probably be in the hospital for several more days until they figure out what is causing it for sure.

I added a link on the right to the web pages on the conjoined twins that were separated at Children’s last week. They have a lot of media pictures on the site. It was eerie because it mimicked Elizabeth’s surgical stays so much. If you take a look, it gives a good idea of the process Elizabeth goes through for each surgery.