The update that should never be written.
Well, this would be the update that we prayed would never be written.
The drain that was a problem was replaced with a stent. The question now will be whether it will give her any relief. They pulled AFPs a couple days ago and it doubled to the high hundred thousands. Marcio ordered a CT that was done just before the stent procedure. All of her liver and abdomen mets have grown considerably in 4 weeks, plus there are so many more new ones. Likely the bile ducts are being squeezed by the tumors that have grown about 50% in her liver. She also has tumor surrounding the blood supply to the abdomen and is likely to start constricting blood flow. She has lost a lot of weight and has so little muscle.
I apologize for all the technical detail, but it is easier to write it this way
The pain has not eased in the 24 hours since placing the stent. Unless something drastic changes, we will likely be going home tomorrow. Everything medical she needs can be done at home, so we will work that out. Grandma and Grandpa are out from Tennessee right now, so there is lots for the boys to do to keep distracted.
Please keep praying for our little angel and sending the love. She is still fighting so hard and needs all the strength sent her way.
We will post as much as we can.
Dad.
5 Comments:
Hello Hill Family,
I saw the most recent post and was disheartened by the news. I have been praying for you all daily and your sweet little Elizabeth is never far from my thoughts.
I do hope she gets some pain relief and know that whatever the future holds there are many of us praying for all of you during this difficult time! Much love and prayers for Elizabeth. May God hold you all in his in His hands in the coming days and weeks as she continues this fight.
Christina Hall (fellow ACC survivor off Edgar's board).
I am sorry to hear these ... news. But you are still in my prayers and always. I pray for that she will feel better soon..
I check on Elizabeth all the time, and I am so sad to read the latest update. I'm still praying for a miracle for your beautiful Princess.
Love and prayers...Megan (www.carepages.com) tannernielsen
I'm so sorry about your latest news. My dog Ozzie and visited Elizabeth a few months ago at Childrens and I haven't been able to get her or you family out of my mind since. It's amazing how such a little girl can have such a big spirit and how one family that you spent 15 minutes with can change you forever.
In that one afternoon you showed me the what strength, love and unity in a family really means.
You are in our thoughts and prayers and I hope you can find strength during this difficult time.
Please know you are loved very much and have so many people that care about your family.
God Bless You.
Carrie Anne Blevins
I'm so sorry about your latest news. My dog Ozzie and visited Elizabeth a few months ago at Childrens and I haven't been able to get her or you family out of my mind since. It's amazing how such a little girl can have such a big spirit and how one family that you spent 15 minutes with can change you forever.
In that one afternoon you showed me the what strength, love and unity in a family really means.
You are in our thoughts and prayers and I hope you can find strength during this difficult time.
Please know you are loved very much and have so many people that care about your family.
God Bless You.
Carrie Anne Blevins
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